posted on July 18, 2005 07:20:16 AM new
I just received a phone call that Ryan is in serious trouble yet again. He has a fungus in his blood that is not responding to antibiotics. The doctors don't know how to kill it. If they cannot kill it, it will eventually attack his vital organs. I have advised my brother to contact St. Jude's because I think this whole thing is getting too much for even the Cleveland Clinic.
On a lighter note, the Cleveland Indians are arranging an auction. The winner will get to throw out the first pitch during a game. I don't know yet what the venue will be, but I'll let everyone know.
posted on July 18, 2005 12:25:13 PM new
Cheryl, the family might also want to contact the local Shriner's group. They typically provide help in transporting children and sometimes provide financial assistance as well.
Did the docs ever determine what the original illness was that brought Ryan to this critical point?
posted on July 18, 2005 01:04:23 PM new
I'm not trying to be a dink Cheryl, but it seems like you're doing all the running around and organizing. I just hope you have help, that's all.
My brother (his grandfather) is doing a lot as well. My neice, Krista, has the other two children. That in and of itself is a great help. People have been great!!
posted on July 18, 2005 02:44:21 PM new
Cheryl, I donated what I could and he has my prayers. Please keep us up to date. And link us to any benefits for him if they are available on-line, or info if they are off-line.
You are one of his blessings.
oops
[ edited by parklane64 on Jul 18, 2005 02:44 PM ]
They aren't saying much about what caused all of this. There was a hint that they may have given him the wrong blood type during a transfusion or tainted blood. Blood is sometimes mislabeled and tainted blood does get through. I don't think we'll ever really know. The hospital will cover themselves on that one.
Sorry to hear Ryan's condition is not improving. It is very difficult to deal with a situation like this. Two weeks ago I had a co-worker that suferred a severe stroke. His condition is not very good. It reminds me of the Terry Schivao situation. He is only 42.
Absolute faith has been shown, consistently, to breed intolerance. And intolerance, history teaches us, again and again, begets violence.
----------------------------------
President George Bush: "Over time the truth will come out."
President George Bush: "Our people are going to find out the truth, and the truth will say that this intelligence was good intelligence. There's no doubt in my mind."
Bush was right. The truth did come out and the facts are he misled Congress and the American people about the reasons we should go to war in Iraq.
posted on July 19, 2005 01:20:58 AM new
Cheryl,
Do any of the practitioners at your clinic know about aromatherapy?
Tea Tree Oil, lavender and lemon essential oils work extremely well, but you really need to work with a pro on a child so young.
I have started using E.O.s in my healing work and am amazed at the results I am seeing.
I have a spiritual advisor that does aromatherapy and the Clinic is very "up" on it. They opened their own alternative therapy (I work for one I helped to start) clinic where they are running trials. She has not been able to get in to see Ryan yet. Only family are allowed in right now. She does have plans to see him once he's allowed other visitors.
We had a massotherapist who, at 81, was diagnosed with breast cancer. She opted not to have the traditional treatments and instead went with alternatives. Magnets were one of the treatments. There is no sign of the cancer anymore. You have to have a strong belief in the stuff or it won't work, IMO. Here in the northeast, people are still way behind the times as far as the alternatives go.
posted on July 19, 2005 06:54:37 AM new
Glad to hear you have a EO/AT close by. I thought you worked with a clinic.
Nice thing about the oils, it doesn't matter what people believe. The oils work at a cellular level and even if you just use them on yourself, they influence the people around you.
Ask your AT what would be the best oils for Ryan. Maybe she can make you a small mix diluted with a carrier oil that you could wear when you go to visit Ryan. It will help him, I'm sure.
posted on July 19, 2005 07:35:08 AM new
St. Jude's will not see Ryan. He's been treated elsewhere is the reason they gave. We'll now check on Rainbow Babies.
posted on July 19, 2005 09:19:03 AM new
LtRay and Cheryl..I know absolutely nothing about aromatherapy and the use of oils in healing..
I would be very interested in learning more.
Would you mind sharing with us here on the RT...either on this thread or start a new one ...about what you know on the subject and what oils do what etc... thanks Maggie
posted on July 19, 2005 10:25:05 AM new
Maggie, I had the same question and found this article about the advantages and disadvantages of "alternative" health practice. At the end of the article is a description and analysis of all such types of treatment with extensive links to more info .... aromatherapy etc.
posted on July 19, 2005 11:10:33 AM newSt. Jude's will not see Ryan. He's been treated elsewhere is the reason they gave. We'll now check on Rainbow Babies.
Cheryl, sorry to hear about the hospital troubles. I know you would prefer to find a hospital closer to home, but has the fmaily considered other hospitals outside of Cleveland?
Here in Chicago, Children's Memorial Hospital specializes in different types of pediatric cancer treatments. I have heard only good things about this hospital.
Absolute faith has been shown, consistently, to breed intolerance. And intolerance, history teaches us, again and again, begets violence.
----------------------------------
President George Bush: "Over time the truth will come out."
President George Bush: "Our people are going to find out the truth, and the truth will say that this intelligence was good intelligence. There's no doubt in my mind."
Bush was right. The truth did come out and the facts are he misled Congress and the American people about the reasons we should go to war in Iraq.
posted on July 20, 2005 07:04:55 PM new
Cheryl...just thought you might be interested in this rating of pediatric hospitals. Cleveland is near the top!
PEDIATRICS
From U.S. News and World Report
1 Children's Hospital of Philadelphia 53.9
2 Children's Hospital Boston 47.2
3 Johns Hopkins Hospital, Baltimore 33.0
4 Texas Children's Hospital, Houston 17.2
5 New York-Presbyterian Univ. Hosp. of Columbia and Cornell 14.8
6 Rainbow Babies and Children's Hospital, Cleveland 14.2
7 Children's Hospital, Denver 12.6
8 Children's Hospital Medical Center, Cincinnati 11.9
9 Children's National Medical Center, Washington, D.C. 10.8
10 Lucile Packard Children's Hospital at Stanford, Palo Alto, Calif. 10.0
11 Children's Memorial Hospital, Chicago 9.9
12 Mattel Children's Hospital at UCLA, Los Angeles 8.5
13 St. Louis Children's Hospital 8.1
14 Children's Hospital of Pittsburgh 7.9
15 Children's Hospital and Regional Medical Center, Seattle 7.8
16 Children's Hospital Los Angeles 7.7
17 University of California, San Francisco Medical Center 7.4
18 St. Jude Children's Research Hospital, Memphis 7.1
19 Duke University Medical Center, Durham, N.C. 4.7
20 Massachusetts General Hospital, Boston 4.5
21 Mayo Clinic, Rochester, Minn. 4.2
22 Children's Healthcare of Atlanta 4.0
23 Children's Hospital of Michigan, Detroit 3.3
24 Children's Medical Center Dallas 3.2
25 Arkansas Children's Hospital, Little Rock
posted on July 20, 2005 07:08:48 PM new
And Cleveland Clinic is rated fourth... right below Johns Hopkins, Mayo Clinic Mass General. WOW!
Johns Hopkins Hospital, Baltimore
32 points in 16 specialties
Mayo Clinic, Rochester, Minn.
28 points in 14 specialties
Massachusetts General Hospital, Boston
24 points in 13 specialties
Cleveland Clinic
23 points in 12 specialties
UCLA Medical Center, Los Angeles
22 points in 14 specialties
Barnes-Jewish Hospital/Washington University, St. Louis
18 points in 11 specialties
New York-Presbyterian Univ. Hosp. of Columbia and Cornell
17 points in 10 specialties
Duke University Medical Center, Durham, N.C.
17 points in 9 specialties
University of Washington Medical Center, Seattle
15 points in 10 specialties
University of California, San Francisco Medical Center
15 points in 8 specialties
University of Michigan Medical Center, Ann Arbor
14 points in 10 specialties
Brigham and Women's Hospital, Boston
10 points in 7 specialties
University of Pittsburgh Medical Center
9 points in 7 specialties
University of Chicago Hospitals
8 points in 7 specialties
Hospital of the University of Pennsylvania, Philadelphia
8 points in 6 specialties
Stanford Hospital and Clinics, Stanford, Calif.
7 points in 6 specialties
He's been treated elsewhere is the reason they gave. We'll now check on Rainbow Babies.